Events & Meetings

Leukodystrophy Australia has fantastic opportunities to have fun, socialise and support us throughout the year. We welcome your participation in, and suggestions about, these events. Perhaps you would like to create and run your own fundraising event to support us and each other!

Fundraising and volunteering are important investments in our future, and our volunteer Committee of Management plays a pivotal role. Should you be interested in the management aspect, we would be most happy to talk with you. Any help you can give is, and will be, greatly appreciated!

If you require support with an event or information regarding the management committee, please contact Jane on 1800 141 400.

Committee Meetings are held the 2nd Tuesday evening bimonthly at 7pm EST

  • 34th ANNUAL GENERAL MEETING

    Saturday 24th October 2.00pm-3.00pm via TEAMS  We are looking forward to you joining us at our 2026 AGM. Come along and say hello and meet our committee. Microsoft Teams link: https://teams.microsoft.com/meet/415960159683201?p=Xw1YhbxCUbfvW3tsIl The formalities The formal business will include, as required by our Model Rules: the confirmation of the Minutes of the 2025 AGM; presentation of […]

  • Charity Challenge Leukodystrophy Golf Day – Melbourne

    Woodlands Golf Club 109 White St, Mordialloc, Victoria, Australia

    Join us for a great day of golf at Woodlands Golf Club in support of Leukodystrophy Australia, a charity that provides support to individuals and families affected by severe genetic neurodegenerative conditions. Date: Wednesday, 2 December 2026Location: Woodlands Golf Club Event schedule Arrival and breakfast: 7:00 amTee-off: 8:00 amLunch and presentations: 12:45 pm Registration Team […]